The Hidden Strength of Working Through a Lupus Flare
0:17
The Hidden Strength of Working Through a Lupus Flare
1.2K views2 months ago
TikToklearnlupus
Earlier this week, lupus reminded me how unpredictable it can be. I went to the ER because of high blood pressure, chest tightness, and difficulty breathing. After heart tests and imaging came back normal, additional labs showed increased lupus activity, which helped explain my symptoms. My prednisone was increased and I’ll be following up with my doctors next month. Sharing my experience to raise awareness and remind others to listen to their bodies 💜 This is my personal experience, not medica
1:01
Earlier this week, lupus reminded me how unpredictable it can be. I went to the ER because of high blood pressure, chest tightness, and difficulty breathing. After heart tests and imaging came back normal, additional labs showed increased lupus activity, which helped explain my symptoms. My prednisone was increased and I’ll be following up with my doctors next month. Sharing my experience to raise awareness and remind others to listen to their bodies 💜 This is my personal experience, not medica
385 views3 months ago
TikToklearnlupus
Lupus Awareness: Navigating Work with a Chronic Illness
0:08
Lupus Awareness: Navigating Work with a Chronic Illness
1.4K views3 months ago
TikTokthe.lupus.ninja
Let’s talk honestly about lupus and disability support. Lupus is unpredictable and invisible, and for some people it makes working consistently impossible. Support systems aren’t always clear, and many people fall through the cracks. In South Africa, lupus can be considered for disability support, but it’s not automatic and it’s based on impact, not just diagnosis. And I know this process looks different in other countries too. If you’re living with lupus, whether you’re in SA or elsewhere, I’d
1:53
Let’s talk honestly about lupus and disability support. Lupus is unpredictable and invisible, and for some people it makes working consistently impossible. Support systems aren’t always clear, and many people fall through the cracks. In South Africa, lupus can be considered for disability support, but it’s not automatic and it’s based on impact, not just diagnosis. And I know this process looks different in other countries too. If you’re living with lupus, whether you’re in SA or elsewhere, I’d
1K views3 months ago
TikTokblackgirlwithlupus
Having lupus and taking meds is just a full-time job where the benefits are “not dying” and the side effects are… everything else. The meds technically work. I am alive. This is the bar. But every day is a negotiation. Like okay, the joint pain is better… but now I’m even more exhausted, my stomach hates me personally, and my brain buffers like it’s on dial-up. Doctors are like, “Let us know if you have side effects.” Mate.. Where would you like me to begin. Some days I can function. Some days I
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Having lupus and taking meds is just a full-time job where the benefits are “not dying” and the side effects are… everything else. The meds technically work. I am alive. This is the bar. But every day is a negotiation. Like okay, the joint pain is better… but now I’m even more exhausted, my stomach hates me personally, and my brain buffers like it’s on dial-up. Doctors are like, “Let us know if you have side effects.” Mate.. Where would you like me to begin. Some days I can function. Some days I
242 views4 months ago
TikTokjayeslupuslifeuk
Lupus
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www.nhs.uk
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Living with lupus is hard, but you don’t have to do it alone. Studies show that having a strong support system improves mental health, lowers stress, and helps with managing chronic illness - because being seen and understood while learning about the best ways to manage lupus matters. This March, join one of our Virtual Support Groups from wherever you are! 🌎 Whether you’re newly diagnosed or have been living with lupus for years, these safe, welcoming spaces are for you. No pressure - just con
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Neuropsychiatric lupus (NPSLE) is grossly underreported and unrecognized by doctors, leading to misdiagnosis and delays in treatment causing further organ damage. Symptoms can vary widely, from mild cognitive dysfunction to severe psychosis or seizures. Common symptoms include headaches, cognitive dysfunction (difficulty with thinking, memory, and attention), mood disorders (anxiety and depression), neuropathy and seizures. Some less common but more severe symptoms can include stroke, psychosis,
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