Donate now for the #GivingTuesday double match to #EndThePain! Donate here: https://hope.pachyonychia.org/donate_paypal/ | Pachyonychia Congenita Project
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PC Project exists so people like our PC friend here doesn’t have to manage on their own for years without a diagnosis. #EndThePain #GeneticTesting #Pachyonychia #RareDisease #PPKs #pEDDs | Pachyonychia Congenita Project
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Jurre (11) heeft Pachyonychia Congenita, een zeldzame genetische aandoening van de huid. Hij vertelt Raïsha hoe hij daarmee omgaat: 'Tot mijn puberteit wordt het steeds erger.' #JZHMH | BNNVARA
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