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Here at my next Remicade infusion… only to find out my dosage is being increased— because my HS and PASH Syndrome are trying to make a comeback. This fight is constant. Just when I think I’m making progress, my body reminds me it’s not done yet. But I’m praying—truly praying—that this higher dose is what my body needs. Because I don’t want to go back to hospital beds, missed moments, or the fear that comes with living in survival mode. I want healing. I want peace. I want more days where I get t
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Night wound check 🌙🩹 We’re officially one week out from my Remicade infusion for November, and I can feel my body shifting again. This journey has been one long rollercoaster of learning how my system responds — the fatigue, the downtime, the emotional reset, all of it. But the trade-off? A life that isn’t ruled by ER visits, admissions, infections, and constant emergency pain. I get tired every single infusion, but the ability to wake up and participate in life, to move, to love, to show up f
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