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Remicade - Twitch
Oct 4, 2022
twitch.tv
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2 months ago
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11 months ago
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Here at my next Remicade infusion… only to find out my dosage is being increased— because my HS and PASH Syndrome are trying to make a comeback. This fight is constant. Just when I think I’m making progress, my body reminds me it’s not done yet. But I’m praying—truly praying—that this higher dose is what my body needs. Because I don’t want to go back to hospital beds, missed moments, or the fear that comes with living in survival mode. I want healing. I want peace. I want more days where I get t
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10 months ago
Facebook
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Night wound check 🌙🩹 We’re officially one week out from my Remicade infusion for November, and I can feel my body shifting again. This journey has been one long rollercoaster of learning how my system responds — the fatigue, the downtime, the emotional reset, all of it. But the trade-off? A life that isn’t ruled by ER visits, admissions, infections, and constant emergency pain. I get tired every single infusion, but the ability to wake up and participate in life, to move, to love, to show up f
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5 months ago
Facebook
Destineé Spruell
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Remicade day 🩺✨ 12/19/25 — and a wound check to go with it. Days like today are a mix of emotions, but I’m walking into this infusion with gratitude and hope. When you’re actively draining and your body is fighting itself, relief isn’t just a want — it’s a need. This medication has given me pieces of my life back that flare-ups tried to take from me, and for that I’m thankful. Living with chronic illness teaches you how to celebrate things other people never have to think about: a little less p
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4 months ago
Facebook
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